Abstract
Background: Spouses of patients with bipolar disorder may experience a different quality of life and burden than seen with major depressive disorder.
Objective: This study was conducted to comparatively analyse spouse’s burden and quality of life in major depressive and bipolar disorders. Methods: This cross-sectional study was conducted on 220 spouses of patients with major depressive and bipolar disorders in the city of Hamadan in Iran, in 2018. Data collection tools included Zarit Burden and QOL-BREF questionnaires. Data were analyzed by a t-test using SPSS -16. Results: The findings showed that 11.8% of spouses of patients with depression and 85.5% of spouses of patients with bipolar disorder experienced severe burden (P < 0.001). The quality of life of spouses of patients with bipolar disorder was lower than with depressive disorder (P < 0.05). In both the groups, a negative correlation was found between burden and QOL. Conclusion: The spouses of patients with bipolar disorder experience more burden and lower quality of life than depression. In both the groups, burden has a negative impact on the quality of life. Professional help and supportive intervention can be provided to the spouses of patients with major depressive and bipolar I disorders to reduce their burden, strengthen their coping skill and thus improve their QOL.Keywords: Burden, quality of life, bipolar disorder, major depressive disorder, spouse, Zarit burden.
Graphical Abstract
[1]
Mental Health Foundation. Fundamental Facts about Mental Health 2016. London: Mental Health Foundation 2016.
[3]
Uddin Ahmed H. Burden among Caregivers of Patients with Mood Disorders. München: GRIN Verlag 2011.
[4]
Kupferberg A, Bicks L, Hasler G. Social functioning in major depressive disorder. Neurosci Biobehav Rev 2016; 69: 313-32.
[5]
Pompili M, Harnic D, Gonda X, et al. Impact of living with bipolar patients: Making sense of caregivers’ burden. World J Psychiatry 2014; 4(1): 1-12.
[6]
Perlick DA, Rosenheck RA, Miklowitz DJ, et al. Caregiver burden and health in bipolar disorder: a cluster analytic approach. J Nerv Ment Dis 2008; 196(6): 484-91.
[7]
Goodwin GM, Haddad PM, Ferrier IN, et al. Evidence-based
guidelines for treating bipolar disorder Revised third edition recommendations
from the British Association for Psychopharmacology. J Psychopharmacol 2016; 30(6): 495-553.
[8]
Perlick DA, Rosenheck RA, Miklowitz DJ, et al. STEP-BD Family Experience Collaborative Study Group. Prevalence and correlates of burden among caregivers of patients with bipolar disorder enrolled in the Systematic Treatment Enhancement Program for Bipolar Disorder. Bipolar Disord 2007; 9(3): 262-73.
[9]
Perlick DA, Rosenheck RR, Clarkin JF, Raue P, Sirey J. Impact of family burden and patient symptom status on clinical outcome in bipolar affective disorder. J Nerv Ment Dis 2001; 189(1): 31-7.
[10]
Shamsaei F, Kermanshahi MKM, Vanaki Z, Hajizadeh E, Hayatbakhsh MR. Experiences of family caregivers of patients with bipolar disorder. Asia-Pac Psychiatry 2010; 2(4): 201-20.
[11]
Javed A, Herrman H. Involving patients, carers and families: an international perspective on emerging priorities. BJPsych Int 2017; 14(1): 1-4.
[12]
Souza ALR, Guimarães RA, de Araújo Vilela D, et al. Factors associated with the burden of family caregivers of patients with mental disorders: a cross-sectional study. BMC Psychiatry 2017; 17(1): 353.
[13]
Paschou A, Damigos D, Skapinakis P, Siamopoulos K. The relationship between burden and depression in spouses of chronic kidney disease patients. Depress Res Treat 2018.20188694168
[14]
Verma S, Sayal A, Vijayan VK, Rizvi SM, Talwar A. Caregiver’s burden in pulmonary arterial hypertension: a clinical review. J Exerc Rehabil 2016; 12(5): 386-92.
[15]
Adelman RD, Tmanova LL, Delgado D, Dion S, Lachs MS. Caregiver burden: a clinical review. JAMA 2014; 311(10): 1052-60.
[16]
Skevington SM, Lotfy M, O’Connell KA. WHOQOL Group. The World Health Organization’s WHOQOL-BREF quality of life assessment: psychometric properties and results of the international field trial. A report from the WHOQOL group. Qual Life Res 2004; 13(2): 299-310.
[17]
Yousefy AR, Ghassemi GR, Sarrafzadegan N, Mallik S, Baghaei AM, Rabiei K. Psychometric properties of the WHOQOL-BREF in an Iranian adult sample. Community Ment Health J 2010; 46(2): 139-47.
[18]
Higginson IJ, Gao W, Jackson D, Murray J, Harding R. Short-form Zarit Caregiver Burden Interviews were valid in advanced conditions. J Clin Epidemiol 2010; 63(5): 535-42.
[19]
Shamsaei F, Cheraghi F, Bashirian S. Burden on family caregivers caring for patients with schizophrenia. Iran J Psychiatry 2015; 10(4): 239-45.
[20]
Perlick DA, Miklowitz DJ, Lopez N, et al. Family-focused treatment for caregivers of patients with bipolar disorder. Bipolar Disord 2010; 12(6): 627-37.
[21]
Ogilvie AD, Morant N, Goodwin GM. The burden on informal caregivers of people with bipolar disorder. Bipolar Disord 2005; 7(1)(Suppl. 1): 25-32.
[22]
Steele A, Maruyama N, Galynker I. Psychiatric symptoms in caregivers of patients with bipolar disorder: a review. J Affect Disord 2010; 121(1-2): 10-21.
[23]
Vieta E, Langosch JM, Figueira ML, et al. Clinical management and burden of bipolar disorder: results from a multinational longitudinal study (WAVE-bd). Int J Neuropsychopharmacol 2013; 16(8): 1719-32.
[24]
Zhou Y, Rosenheck R, Mohamed S, Ou Y, Ning Y, He H. Comparison of burden among family members of patients diagnosed with schizophrenia and bipolar disorder in a large acute psychiatric hospital in China. BMC Psychiatry 2016; 16(1): 283.
[25]
Chakrabarti S, Gill S. Coping and its correlates among caregivers of patients with bipolar disorder: a preliminary study. Bipolar Disord 2002; 4(1): 50-60.
[26]
Manning JS. Burden of illness in bipolar depression. Prim Care Companion J Clin Psychiatry 2005; 7(6): 259-67.
[27]
Caqueo-Urízar A, Alessandrini M, Urzúa A, Zendjidjian X, Boyer L, Williams DR. Caregiver’s quality of life and its positive impact on symptomatology and quality of life of patients with schizophrenia. Health Qual Life Outcomes 2017; 15(1): 76.
[28]
Akbari M, Alavi M, Irajpour A, Maghsoudi J. Challenges of family caregivers of patients with mental disorders in Iran: a narrative review. Iran J Nurs Midwifery Res 2018; 23(5): 329-37.
[29]
Grant M, Sun V, Fujinami R, et al. Family caregiver burden, skills preparedness, and quality of life in non-small cell lung cancer. Oncol Nurs Forum 2013; 40(4): 337-46.
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