The Flat Earth: Working with Patients and Patient Advocates in our Connected World

This is a patient´s journey after a diagnosis of rare cancer in the

US and multiple treatments in Europe who became active in the cancer support

community, communicating and networking with each other, patient to patient,

provider to provider, and provider to patient. In addition of being active in their patient

networks, this is a prime example of how patients can contribute to the scientific

community by actively participating in social networks and global scientific

conferences.

Keywords: Cancer diagnosis, Cancer experience, Cancer survivor, Cancer support community, Metastatic pancreatic neuroendocrine tumors, PNET, Social networks, Thera(g)nostics, WARMTH.

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